PATIENT AND FAMILY AUDIO VIDEO LIBRARY

 

The Patient and Family Audio Video Library contains recordings of our patient and family interviews.

Visit our website frequently for updated videos!

 

Interviews of patient and families
 

Pamela Mason is a patient advocate with experience navigating gastrointestinal motility disorders and multiple complex, chronic health conditions, including autoimmune rheumatoid arthritis.

Samantha Saur is a patient with gastroparesis, a patient advocate, and leader of G-PACT.


Magdalena Tywoniuk is a patient with chronic intestinal pseudo-obstruction and Ehlers Syndrome. Part One
 


Carol Mae Ray is a patient with chronic constipation.
 


Ellen Wolk is a patient with gastroparesis.
 


Kim Robinson is a patient with gastroparesis, colonic inertia, pelvic floor dysfunction, small intestinal bacterial overgrowth, Clostridioides difficile, and fatty liver disease. She has also had a colectomy with anastomosis.
 


Magdalena Tywoniuk is a patient with chronic intestinal pseudo-obstruction and Ehlers Danlos Syndrome. Part Two
 


Cheryl Lynn Raudebough is a patient with gastroparesis, POTS, small fiber neuropathy, Ehlers Danlos Syndrome Type 3 (also known as hypermobile and large fiber neuropathy)
 



Laura Dotson is a patient with gastroparesis and a co-author of the book Comforting Your Uncomfortable Stomach

 

Interview featuring Samantha Konigsberg, a patient with Juvenile idiopathic arthritis, pseudo-obstruction
 

Julie Martinez is a mother of a child with chronic intestinal pseudo-obstruction

 

Carrie Meckstroth is the mother of a child with dyssynergic defecation
 

Jaci Smith is the sister of Billie Sweeney, a patient with gastroparesis
 

Lilly VanHouten is the daughter of a parent with gastroparesis and who is also a patient advocate
 

Anne Revenko is a patient who had a multi-transplant
 

Michael DeGrazia is a patient with an anal fissure, fistula, and small intestinal bacterial overgrowth